Public Data Sets and Servers

Here are some links to sites with public data sets which can be downloaded or are accessible by server query.  Some sites may require registration.  Truly “Big” data sets (which I define arbitrarily at > 0.5 Tb)  are likely not downloadable without large bandwidth.  Many are available on via Amazon Web Services (see their AWS Public Data Sets site).

Have a site you would like to contribute to this list?  Let us know at sitemaster@BigDataMedSci.com

 

HEALTHCARE DATA

Medicare Data: data.medicare.gov

HCUP Inpatient Data:  hcup-us.ahrq.gov

National Health Information Survey (from the CDC):  www.cdc.gov/nchs/nhis

U.S. Surveillence, Epidemiology, and End Results (SEER) cancer data (requires registration):  seer.cancer.gov

Healthcare Cost and Utilization Project (HCUP) inpatient longitudinal database:  www.ahrq.gov

Data Portal India (with healthcare data sets):  data.gov.in

European Open Data Portal (healthcare data sets):  open-data.europa.eu

New York State Open Health Data collection (many data sets):  health.data.ny.gov

National Provider Index Dataset (CMS NPI file ~1.5 million records x 50 fields):  nppes.viva-it.com

 

DATA SETS AVAILABLE FOR PURCHASE

FAIR Health, Inc. (very large claims data sets for research):  www.fairhealth.org

NotOnlyDev (very large NPI provider data sets with linkages):  notonlydev.com

 

DE-IDENTIFIED PATIENT LEVEL DATA

MIMIC:  Multiparameter Intelligent Monitoring in Intensive Care (~2 TB):  physionet.org

TEDS:  The Treatment Episode Data Set for Alcohol and Substance Abuse:  oas.samhsa.gov/dasis

California Patient Level Data Sets (requires application):  www.oshpd.ca.gov

 

TRANSLATIONAL DATA

10,000 Genomes Project Data:  www.1000genomes.org

 

BIOINFORMATICS DATA

Biogrid Protein-Protein Interaction Data:  thebiogrid.org

 

POPULATION and ECONOMIC DATA

US Census Data:  www.census.gov

US Economic Census Data:  www.census.gov

EU Population Data:  open-data.europa.eu

 

 

 

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